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Free first aid poster
What to do when someone has a seizure
Research reports
Anti-epileptic medication packaging survey
Research suggests that a tiny difference between two versions of the same anti-epileptic drug may cause problems for people with epilepsy if they are switched from one to another. It is believed that these problems may cause changes to seizure pattern, or side effects.
People can be given brand name drugs, versions from different manufacturers (generic drugs), drugs made in the UK, or drugs manufactured elsewhere in Europe (parallel imports). Epilepsy Action wishes to establish how big a problem these issues are for people with epilepsy.
In autumn 2003 Epilepsy Action distributed a questionnaire to its members asking if they had had any difficulty obtaining their usual anti-epileptic medication. We had a fantastic response, with almost 1,800 people returning questionnaires.
Published by Epilepsy Action, 17 pages, September 2004
Price: £5.00
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Care for people developing epilepsy after the age of 60
Later life is a common time for people to develop seizures.
Research has indicated that older people experience an increased risk of anxiety and a perceived reduction in their quality of life compared with people diagnosed with epilepsy at a younger age.
This research provides an overview of the experience of people diagnosed with epilepsy after the age of sixty, concentrating on the information and support offered to this group.
Published by Epilepsy Action, 14 pages, July 2003
Price: £5.00
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South Asians and epilepsy
Understanding the health experiences, needs and beliefs in communities in Bradford
In 2001 Epilepsy Action commissioned Bradford Hospitals NHS Trust to undertake research into the experiences and understanding of epilepsy amongst South Asian communities in Bradford. The main aim of the study was to examine the experiences of South Asians with epilepsy in relation to their health needs and beliefs, and to address their health provision needs, lifestyle considerations, complementary therapies and provision of epilepsy services.
Published by Epilepsy Action, 135 pages, December 2003
Price: £15.00
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Anti-epileptic drugs and the risk of osteoporosis and osteomalacia
Studies suggest that bone disease is a potential side effect of certain anti-epileptic medication.
This study provides a snapshot of the extent to which people with epilepsy were told about this problem, and what treatment was offered to people most at risk of developing bone disease.
Published by Epilepsy Action, 10 pages, July 2003
Price: £5.00
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